CAREGIVING RESOURCES
End-of-Life
Issues ...
LOCAL
OFFICES FOR THE AGING
Here is a great resource for information of all types concerning the care
of your aging loved one. Your state & local OFA can answer all of
the questions that plague you from Medicare/Medicaid issues to in-home
and adult day care services. Give them a call. They'll be glad to help!
NEW YORK STATE OFFICE FOR THE AGING (NYSOFA)
The New York State OFA aids older New Yorkers in retaining their independence
for as long as possible through advocacy and the development of cost-effective
programs and services that empower the elderly and their families.
AARP
From estate
planning to palliative
care, let AARP help you choose what works best for your care recipient.
ELDER WEB
This website lists numerous articles and links to make navigating this
difficult transition less frightening. See their End-of-Life
section.
FAMILY
CAREGIVER ALLIANCE
Often described as a "one-stop shopping center for caregivers,"
the FCA has developed a wide array of services based on consumer needs.
Decision Making, CPR
& DNR, Feeding
Tubes & Ventilators and Holding
On & Letting Go are a few of the issues covered in this excellent
resource.
FUNERAL CONSUMERS ALLIANCE
A federation of nonprofit consumer information societies, this organization
was created to help you the consumer make sense out of funeral arrangements
and the myriad of choices involved as well as to keep you from paying
too much!
FUNERAL HELP.COM
Knowing what to ask, what to say, and who to call can save you hundreds
or even thousands of dollars. This site seeks to educate the public on
what is and isn't required by law regarding funerals and can also show
you ways to avoid the common sales ploys, misconceptions, and downright
scams that may overwhelm you at such a vulnerable time.
FUNERALS:
A CONSUMER GUIDE
Provided via the Federal Trade Commission's website, this guide will step
you through the difficult maze of choices and decisions that confront
you when making funeral arrangements.
GROWTH HOUSE.ORG: Improving
Care for the Dying
A portal to resources and information on life-threatening illnesses
and end-of-life care. Includes links concerning such major issues as hospice
and home care, palliative
care, pain management,
grief and death
with dignity.
HOSPICE
FOUNDATION OF AMERICA
We've all heard of it, but what
is it and how does it work? Here are the answers to put your mind
at ease. Also, see their End
of Life section.
HOSPICENET.ORG
Another good Hospice site. Includes sections on Caregiving
and Grief Management
and Bereavement.
AMERICAN HOSPICE FOUNDATION
Based in Washington DC, this Hospice website includes a Legal
Corner to assist with end-of-life issues and "Ask
Helen", a free service for adults over the age of 18 who are
grieving the death of a family member, friend, student or colleague.
NATIONAL
HOSPICE AND PALLIATIVE CARE ORGANIZATION (NHPCO)
Includes a Medicare
Hospice Benefit section and a FAQ
sheet.
INNOVATIONS IN END-OF-LIFE
CARE
Though discontinued in October of 2003, this international online journal
features peer-reviewed promising practices in end-of-life care, useful
tools, selected bibliographies, and other resources. All past articles
have been archived and are fully searchable.
OFFICE OF THE NEW YORK
STATE ATTORNEY GENERAL
The website for New York State Attorney General Eliot Spitzer. The newly
offered .pdf Planning
Your Health Care In Advance: How To Make End-Of-Life Wishes Known And
Honored is the definitive guide to end-of-life issues. Includes Health
Care Proxy, New York Living Will and non-hospital DNR forms on pages 19
- 25.
ON
OUR OWN TERMS: Bill Moyers on Dying
The companion website developed from the PBS program, this site has numerous
links, articles, transcripts and discussion opportunities. A wonderful
resource for end-of-life
tools, care
options and support.
WITH OPEN EYES.ORG
With sections for Grief
and Healing, Difficult
Decisions, Caregiving
and Beyond
Life and Death this site covers issues on advanced directives, discussions
on the afterlife, counsel for caregivers and much much more. Includes
full transcripts of the PBS program for which it was created.
Disclaimer : Mid-York Library System does not endorse the commercial products or services available through several links on this website and is in no way responsible for dissatisfaction of service or injury resulting from the misuse of any product. These links are provided solely in the interest of educating the public on the availability of products and services that may be helpful in the daily routine of caregiving.
State
& Local Offices for the Aging
The best help you can find .
. .
Advanced
Directive Forms
Power
of Attorney, Living
Will, DNR
. . .
What's
the Patient's Code Status?
Guide to Advanced Directives and Code Status Designations
. . .
Hospice
Hospice & Palliative Care Links
. . .
MedLine Plus
Drug
Information, Medical
Encyclopedia . . .